CF Twin & Sib Study - CF and Genetics Links

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CF and Genetics Links

There are many resources available on line for people interested in learning more about genetics. Below are some of the links to sites that we think are most helpful:

This National Library of Medicine site discusses genetic disorders from A to Z and has internal links to concepts and tools to help you understand some basics of human genetics.

http://ghr.nlm.nih.gov/

This link is also directed to the National Library of Medicine website, but it focuses more specifically to information about genetic mutations and their affect on health.

http://ghr.nlm.nih.gov/handbook/mutationsanddisorders

This link directs you to the National Human Genome Research Institute's web page on Cystic Fibrosis. It contains additional resources/links if you are interested in policy, or similar content.

http://www.genome.gov/page.cfm?pageID=10001213

This link is sponsored by the Dolan DNA learning center. It is rich with information and graphics on CF, but will also link you to "DNA from the Beginning" which has wonderful content on the basics of genetics.

http://www.ygyh.org/cf/whatisit.htm

Information and Support for People with CF

Some links for adults with CF who are seeking information and support.

Below are websites that contain general information about CF for all interested in the disease. These pages may also include support links, and additional education about the condition.

http://www.cff.org/ [US Cystic Fibrosis Website]
http://www.esiason.org/ [Boomer Esiason Foundation Website]
http://www.ccff.ca/ [Canadian Cystic Fibrosis Foundation Website]
http://www.cfww.org/ [ World Wide Cystic Fibrosis Information]
http://www.cysticfibrosis.com/ [Blogs, videos, and links for CF support and education]
http://www.marchofdimes.com/pnhec/4439_1213.asp [March of Dimes Web page on CF]
http://www.r4stars.org/ [Resources, knowledge, and support for People with CF]
http://www.nhlbi.nih.gov/health/dci/Diseases/cf/cf_what.html [National Institutes of Health Heart Lung Blood Institute Web page on CF]
http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html [National Library of Medicine CF Web page]
http://www3.nbnet.nb.ca/normap/CF.htm [Website with hundreds(!) of links to information on CF. Lovingly developed and maintained by a person with CF]
http://www.hopkinscf.org/ [Hopkins Pediatric Center Website- sections for adolescents, children and their families]
http://eCysticFibrosisReview.com [Website hosted by Hopkins Medicine CF Center. Provides continuing education to CF Care providers. Reviews of clinical writings and research]